Saturday, April 30, 2011

"Fair" doesn't mean "the same"
(part 5: making the right decisions)

Wow! This series was supposed to only be two posts, but it turned out that I had enough useful tips for five. This is the final one, but please check out the other four if you missed them:
In this post, I'll be sharing largely from the research of Bryant, Smith, and Bryant, as shared in Teaching Students with Special Needs in Inclusive Classrooms (2008). They recommend this framework for making decisions about modifications and accommodations, which creates the acronym ADAPT.

ASK "What am I requiring the student to do?"

DETERMINE the prerequisite skills of the task.

ANALYZE the student's strengths and struggles.

PROPOSE and implement adaptations from among the four categories:
  1. instructional content
  2. instructional materials
  3. instructional delivery
  4. instructional activity
TEST to determine if the adaptations helped the student accomplish the task. [If not, go back to the beginning and repeat the process! And, remember, a "test" can simply be a checklist or an observation.]

This framework has been more beneficial to me than any other. However, it was not designed for ministry settings, so please do not forget that every step, every conversation, and every interaction needs to be bathed in prayer. God is the One guiding it, and He's the One who knows what each person needs. He made them to have those needs, just as He made you to have certain needs. Don't let anything related to accommodations and modifications or any other aspect of ministry (special needs related or not) become dry; let it be overflowing with the living water that only comes from Christ.

"Whoever believes in me, as the Scripture has said, 'Out of his heart will flow rivers of living water.'" {Christ, in John 7:38}

I hope it (and this entire series) has been helpful to you and your ministry!

Friday, April 29, 2011

Fridays from the Families: Helping children with special needs adjust to church renovations

Last week I posted about a new series in which you'll hear directly from individuals with special needs and their families. Today I kick it off with Becky who blogs about life with Mozart, Picasso, and Princess at paintingwithpicasso.blogspot.com. If you follow Amy Fenton Lee's blog, The Inclusive Church, you may know Becky as the mom who took Amy's posts about mothers with autism and personalized them. I would highly recommend you check out Becky's blog once you're done with the incredibly useful post below!

And, without any more introduction from me, read on from Becky about her family's experiences after the renovation of their church building...
 ~+~

Recently, for many different reasons, our church decided to go through a re-evaluation of our ministry goals, to review our purposes for each ministry of the church, and to find ways to better reach our community. Along with this came an opportunity to do some major renovations inside our church building, as we prepare to be the best church for the neighborhood. We took what had been a small lobby area, crammed with offices, and took out & relocated the main office. The space is now a wide-open lobby, with a café, space to sit and mingle and enjoy conversation. Sounds great, right? It absolutely is! Except...

Our son has special needs and has huge problems with change & transitions.

My name is Becky. My husband, Tim, and I are parents to 3 wonderful kids, ages 11, 6 & 4. Our middle child has some definite special needs. We are in the process of getting an appointment with a local children's hospital to see whether or not he will get an official diagnosis of Asperger’s Syndrome, as he meets all of the criteria based on psycho-educational evaluations.

Tim & I have tried to prepare our kids for the coming internal changes, especially since we know that our son has trouble. A few weeks ago, our son was having trouble in church - not sitting well, not able to listen well - very unusual for him. I took him out of church to give him a break and to try and figure out what was bothering him. As I watched him explore and look around the building, it became more evident that what was bothering him were the changes in the building. I thought I had done a pretty good job, but I probably could have done better, especially knowing just how hard change can be for my own child.

How could I have prepared our son better? And how can you prepare your child who may also have issues with change and transition? Here are some ideas that will hopefully help if there are changes planned for your church or for another place you regularly visit.
  1. As soon as you find out about the changes, take a picture of the “old” before work begins (or, as early in the process as you are able).
  2. Visit regularly to see progress, and have the “old” photo handy to remember what it did look like.
  3. Visit at times when it’s not busy - for us, with the church, that meant stopping by on a weeknight while there was work going on.
  4. With your child, talk with someone in charge about the renovations - the purpose, what the finished project will look like. You’ll find that people are eager to discuss a change about which they’re passionate. They do not need to explain great details, just be available to explain & answer questions your child might have. (If possible, set this up before-hand, so that you can explain your child’s needs & reason for questions, to the person with whom you’ll talk. This will help prepare them for how to best explain things to your child.)
  5. Be sensitive to the fact that your child may take several weeks to adjust to the “newness” of the finished project. Keep the photo of the “old” with you to explain differences. For us, that meant reminding our son that the café area used to be an office. There wasn’t room for him to sit and talk with his friends after church. Now the café area allows for extra time with friends, a snack, and a lot of people getting to enjoy each other’s company.
Kids who have troubles with change & transitions take some time to get used to the finished project. We expect that since it’s “done” that all is well. Really, that’s just about “halfway through the project” for a child with issues with transition and change.

Most importantly, be patient! Change is tough for a lot of people. For kids with special needs change can be a particularly hard thing, especially when the change is out of their control. Give them time to internalize the change by spending extra time with them in the new environment. Answer questions, make sure they have opportunity to have some positive experiences in the new setting, and be patient. They will adjust - and they will probably adjust well! - but we need to be patient and understand that they will adjust according to their needs.

~+~
Thank you, Becky, for being our first guest blogger for this series. Once again, you can - and should! - read more from her here!

Thursday, April 28, 2011

Our church's curriculum: Treasuring Christ

We have used curricula from GospelLight and Orange on Sunday morning, and - for kids with special needs - we've liked GospelLight best because it includes more activities that worked for our kids. (I overheard at the Accessibility Summit that McLean Bible Church's Access Ministry made the same call, using GospelLight instead of a curriculum specific to special needs ministry.)

However, I'm so very excited about this announcement:
Our church has been working with ministry leaders across the country to create Treasuring Christ, a unified curriculum for early childhood through high school that is Gospel-centered and connects church and home in meaningful ways. And it's available now here!

It is not specific to special needs ministry, but you can use tips from my posts on accommodations and modifications this week for help with that, and we'll be providing some guidance in the near future about using it in special needs ministry settings. (One example is that the curriculum is written in a scaffolded way, with every age group studying the same thing at different age-appropriate levels. This can allow you to pull elements from the younger grade's curriculum to use with older students if necessary.)

I'll be posting more about it in the future, but for now let's me just say this:

CHECK. IT. OUT: http://www.treasuringchristonline.com

Now.

(Seriously.)

And please share the site with others if you find it useful!

"Fair" doesn't mean "the same"
(part 4: helpful questions)

I originally planned for this series to just be two posts. To do it justice, though, I've expanded it to five! Here is post four of five. If you missed the previous three, please check them out first:
And now in this penultimate post, I will offer some questions that may be useful for selecting modifications and accommodations for students. I initially wrote this as part of a professional development guide I wrote while working with the national design team for Teach For America, but I have adapted it for ministry settings.

Presentation:
  • Can the student listen to and/or follow oral directions given by an adult or an audio tape?
  • Can the student read the Bible story in the same way as other students (i.e. from a personal Bible or from the Bible story page from the curriculum)?
  • Can the student read and/or understand the story with simplified wording?
  • Can the student read the story with enlarged text?
  • Can the student understand a different, complementary story if she can't understand the one planned for the lesson?
  • Is the student overwhelmed by a lot of text on a page?
  • Does the student have sensory problems that could be helped by increasing contrast with colored paper or colored transparency overlays on top of the story?
  • Does the student need the story read out loud to him?
  • Is the student unable to participate in class without reminders to stay on task?
  • Does the student need visual, auditory, or illustrated cues in addition to written directions?
Response:
  • Can the student respond verbally?
  • Can the student respond nonverbally? If so, how?
  • Can the student write?
  • Does the student have difficulties writing that could be helped by using a word processor?
  • Does the student’s disability affect the amount of writing he can produce?
Timing:
  • Does the student need extra time due to his disability to process questions?
  • Does the student need breaks to stay focused?
  • Does the student become anxious when working on certain skills (such as reciting a memory verse) so that it might be optimal to complete it at a different time than other students?
  • Does the student learn better, worse, or the same following physical activities (i.e. would it help to schedule game/rec time or playground trips at a certain time in the class)?
Setting:
  • Can the student learn the Bible story and concepts in a typically sized class?
  • Can the student only learn the Bible story and concepts with a few other students in the room?
  • Can the student only learn the Bible story and concepts in a one-on-one setting?
  • Does the student exhibit behaviors that are distracting to other students?
  • Is the student easily distracted or overwhelmed by motion, noise, or visual displays?
  • Does the student need to take the test in a different way from other students, such as orally? If so, then a different setting may be necessary.
Classroom aids and design:
  • Does the student function better when a predicable routine is followed?
  • Can the student learn about the Bible story without additional visual aids or other sensory inputs?
  • Can the student physically enter the classroom or Bible study setting?
  • Does the classroom design encourage or inhibit learning for the student?
Would you add any more questions to the mix? C'mon, I know I didn't include all possible questions. (And my love language is comments. Just saying.)


And as a reminder, tomorrow kicks of the first post in the series Fridays from the Families. You don't want to miss what Becky has to share here then! On Saturday, I'll be posting the final part of this series, part 5: making the right choices.

Wednesday, April 27, 2011

"Fair" doesn't mean "the same"
(part 3: how)

On Monday, I posted about why modifications and accommodations may be necessary in special needs ministry. Yesterday, I defined the terms. (If you missed either of those posts, please read them before continuing with this third installment!)

And today I promised to share specific strategies. This is not meant to be a complete list, but it should give you an idea of the types of changes that could be useful. (However, as we'll see in the posts coming tomorrow and Saturday, we need to keep in mind that each is chosen on an individual, case-by-case basis.) Without further ado...

Accommodations (changes to how content is taught or presented)
  • Presenting instructions in multiple ways, offering clarification as necessary
  • Posting visuals, like a stop sign by the door to remind individuals not to exit the classroom without permission
  • Providing reminders to help students stay on task or focus
  • Creating and implementing an elopement plan for individuals at risk for leaving
  • Choosing a different classroom that you would typically use (so that a wheelchair can be accommodated, for example, or so that more space is available for a child with sensory integration difficulties to have a cool-down corner)
  • Enlarging font size
  • Providing sign language interpreters and/or providing reserved seating near the front for individuals who need to read the lips of the preacher
  • Allowing a person to answer in a different way (i.e. nonverbal responses if speech ability is limited; verbal responses if written one are difficult; and so on)
  • Including open spaces in which wheelchair seating can be accommodated without forcing people to sit in the aisles
  • Teaching in a multi-sensory way to target different learning styles (i.e. incorporating visuals, audio, movement, and touch whenever possible)
  • Letting a child listen instead of singing during music time
  • Splitting one class into two for someone who does better with smaller settings
  • Providing preferential seating, adaptive furniture, and/or special lighting or acoustics.
  • Positioning yourself near a student who needs more frequent redirection or who does better with closer proximity to you
  • Offering alternate worship areas (for example, we offer a smaller worship setting in which the service is projected on large screens, as well as our larger sanctuary)
  • Posting schedules, which can help provide a predictable structure for kids who need that
  • Limiting distractions
  • Using technology to augment lessons or to assist learning (for the group or the individual; i.e. we have a high school student who is nonverbal, using an audio Bible device to "read" aloud during class and texting his leaders prayer requests that he wants them to pray out loud)
  • Providing a Bible story page with visuals
  • Creating a graphic organizer for students to jot down their notes during a sermon or class (for examples, see here and here)
  • Avoiding idiomatic expressions or sarcasm for students who think in more literal or concrete ways
  • Using more stringent good health policies (for example, in a class with a child who is medically fragile) 
Modifications (changes to what is taught)
  • Creating a separate class for children with disabilities (even when this class uses the same exact curriculum, learning it in an environment separate from non-disabled peers does typically change what is learned and not just how it is learned)
  • Using a different curriculum, such as one designed for people with special needs (a few are available, but I'm most familiar with Lifeway's Special Buddies for elementary and we use Access in our separate class for teens and adults) or one designed for younger children (for example, using elements from a preschool curriculum for an elementary-aged student)
  • Simplifying what it taught or teaching a child one-on-one instead of in the larger group (which is what we do for one child who hasn't successfully been part of the Bible teaching time in his class; instead, he and his buddy do related puzzles and talk about the same story at a level suitable for him)
  • Prioritizing different content for different students
  • Changing expectations for students based on their needs (for example, one preschooler with Down syndrome only learned one Bible verse during a year in AWANA at our church - a feat that we celebrated with him and his family because he met reasonable expectations for his abilities!)
As I mentioned earlier, these lists are certainly not exhaustive. What else would you include?

Come back tomorrow for questions you can use for selecting the right modifications and accommodations to use, in part 4: helpful questions, and Saturday for a paradigm to use in decision-making, in part 5: making the right decisions.

Tuesday, April 26, 2011

"Fair" doesn't mean "the same"
(part 2: the terms & mindset)

Yesterday, I explained why "fair" doesn't mean "the same" in special needs ministry. Today, we'll begin focusing on the "how" component: What are those not-the-same things that can make a difference for individuals with disabilities in your ministry? And tomorrow I'll provide some specific strategies, in part 3: how (which was originally promised for today, but this part ended up being longer than I expected, so the two part series has become longer than planned...actually, it will be five posts in all, wrapping up on Saturday!).

First, let's play a little Webster's...what are accommodations and modifications anyway? In the field of special education, an accommodation is a change in the way that a student is expected to learn or the manner in which she is tested (or, in a church setting, the way in which he is expected to recite a memory verse). A modification, on the other hand, is a change in the material that student is expected to learn.

Sometimes the terms are used interchangeably (as I have and will often use them on this blog), but the distinction is important. An accommodation is an adjustment in how learning takes place (for example, using a hearing aid or reading a Bible in Braille), while a modification changes what is learned. When you make an accommodation for an individual, that person still learns the same thing, just in a different way. When you make a modification, the person learns something different - sometimes a more simplified version of the same content, sometimes a completely different lesson.

When used well, modifications and accommodations act as undercover agents, meeting specific needs. By "undercover agents," I mean that they should not be obvious, nor should their cover be blown for anyone who doesn't have to be in the know.

Or, to use an even better analogy, proper accommodations and modifications are like contact lenses in two ways:
  1. You choose them to meet the specific needs of an individual. If I tried to wear my husband's contacts, they would do more damage to me than good because my eyesight is pretty good. In fact, they wouldn't even fit me, because the shape of my eyes are not the same as his. Likewise, it does not help individuals with special needs to provide too few or too many modifications or accommodations. You're just aiming to meet the specific needs of the person. Think like Goldilocks: you want to find "just right."
  2. When being used correctly, they shouldn't be obvious. You can't tell at a glance that my husband is wearing contacts. Meanwhile, when I wear my glasses, they're hard to overlook. As you'll see in my lists of specific strategies, some are more obvious than others; you just don't want to draw undue attention to any of them.
 As with anything else we do in special needs ministry, modifications and accommodations should be chosen and implemented out of love and respect for the individual.

Come back tomorrow for the third post in this series, which will provide some specific modifications and accommodations that could be useful as you minister to and with people with special needs in your church! I'll follow that with a post on Thursday with helpful questions to consider for each person and a final post on Saturday to help you make decisions. (Plus Friday kicks off my new guest blogger series - you don't want to miss it!)

(Photo credit)

Monday, April 25, 2011

"Fair" doesn't mean "the same"
(part 1: why)

"But that's not fair!" When someone declares that, it usually means "that's not the same."

As in, "It's not fair to designate one volunteer to one child when we usually have one volunteer for seven kids."

Or "It's not fair to change some of our materials for one kid."

Or "It's not fair to devote money and resources to a ministry that serves so few."

Is it the same? No. Is it fair, though? Yes.

Would you deprive one kid of training wheels on her bike just because other kids might not need them? Or would you tell a child to take off his glasses just because everyone else in the class has perfect eyesight? No. Once again, it's not the same, but it's fair nonetheless.

Tomorrow I'll be posting some modifications and accommodations you can make for individuals with special needs in a church setting, both low-effort and high-effort ones. That'll be "part 2: how," what it looks like. (Edited to clarify that this is now a five-part series, with other posts on Tuesday, Wednesday, Thursday, and Saturday. I pray that it'll be helpful to you!)

(And, while I included the picture for the sake of illustration, isn't my little girl cute?)

Sunday, April 24, 2011

"But what if it just seems too hard and requires too much?"

You may think it's too hard. Special needs ministry will require too much. Maybe it hasn't been done before at your church. You may hear, "Well, we just don't have what it takes to..."

But, on this Resurrection Sunday evening, consider this:

Was the act of salvation too hard?

Did the cross require too much?

Had God sacrificing Himself ever been done before?

Did even the disciples trust that Christ had what it took to defeat death and the grave, as they mourned in hiding the day before He rose again?

It's Easter, y'all. It's a great day to remember - in light of special needs ministry and every other aspect of life - that God deals in the impossible. If you could do it on your own, you wouldn't need Him anyway.

Don't camp out on the Saturday before the resurrection, limited by your understanding of the present reality. Live and serve and rejoice in Sunday, in the complete lack of limitations on our God.

He is not here; he has risen, just as he said...
Matthew 28:6

Friday, April 22, 2011

Fridays from the Families: A new series launching next week (and guest posters wanted!)

As I began this blog, I knew one crucial aspect could be missing: the personal, real-life experiences of individuals with special needs and their families. I am a momma, but neither of my children has special needs. I do have a couple of health issues, but none that require anything different for me on Sunday morning than anyone else would need. That's why I link to other blogs with that perspective whenever I can!

Enter Fridays from the Families. This series will run on Fridays (obviously!) and feature guest bloggers, some who I know in real life and some who I met online. I have a few lined up, and I have a few more in mind who I'll be emailing in the near future. And I'm thrilled to kick it off next week with Becky, who writes about life with Mozart, Picasso, and a Princess at http://paintingwithpicasso.blogspot.com! (I already have the post saved, and it is absolutely wonderful!)

Here's what I shared with each of the guest posters when I asked them to join us for this series:
The series will be one in which people with special needs and/or their family members share their successes and struggles with church and faith in light of their special needs. One trend I see is that churches who don't do special needs ministry have two reasons: (1) they don't know the realities and needs and/or (2) they are aware of the need but they don't know what to do or where to start. Letting those with special needs and their families offer their perspectives could help change that, I hope. And it can encourage those who are already working in special needs ministry.

With that in mind, the options for topics are pretty wide open. Here are some possibilities, but it's certainly not an exhaustive list:
how your faith has changed or matured since your child with special needs was born/diagnosed,  what church leaders should know about families and/or individuals with special needs and/or about your child's specific special needs, what has been more difficult at church for your family since you had a child with special needs, why it's important for you to be able to go to church and know that your child with special needs is being loved and cared for in children's ministry, what your spiritual goals are for your child (and how those do/don't differ from the goals you have for your children), what has/hasn't worked for your family at church, what advice you would offer to other parents who want to be involved with church but aren't sure how to do that with a child with special needs, or what ways you could see (or have seen) churches minister to families with special needs beyond Sunday morning
I know that's a long list, and I certainly wouldn't expect any single guest blogger to take on the full list! Basically, ANY topic related to special needs ministry and/or parenting a child with special needs would be fantastic. If there's something entirely different that you think would make a great post instead of any of the ideas listed above, feel free to run with that instead.
That description above gives you the gist of what I'm aiming for. It was, however, written to a parent of a young child, so I would adjust the suggestions for an adult with special needs who is posting or for another different family situation (such as siblings, parents with adult children, or spouses).

If you would be interested in guest posting for this ongoing series or if you know someone who would, please email me at shannon@theworksofgoddisplayed.com.

Wednesday, April 20, 2011

What's your ministry's elopement plan?

No, no, I'm not talking about people running off to get married. I'm talking about one expression of several disabilities: elopement. It would be described in lay terms as wandering, running away, escaping, or darting off. We have a couple of repeat offenders on Sunday mornings in our ministry.

The two eloping fellows at our church happen to have Down syndrome, but preliminary reports from new research indicate that about half of kids with autism wander.

Below I have a list of tips for working with individuals who elope in ministry settings, but please leave a comment if you have anything else to add!
  • Talk with the parents/caregivers. If someone is eloping at church, it probably isn't the first time. What has worked in the past? What hasn't?
  • Be proactive. It's always best to avoid elopement if you can! This extends to planning space well (such as arranging the room so that no one has any reason to be near the door) and planning class activity well (so that individuals are less likely to wander). Also...
  • Pay attention, and try to figure out the cause(s). Behaviors don't just happen. If someone is eloping, odds are good that something is triggering that. Pay attention to what happens before the person tries to leave, including what other volunteers are doing, what classmates are doing, and how the individual is acting (frustrated? bored? overstimulated?). According to this research, parents reported the following reasons for elopement: the child enjoys exploring (54%), heads for a favorite place (36%), escapes demands/anxieties (33%), pursues special topic (31%), and/or escapes sensory discomfort (27%). In a church setting, that means a child might elope to get to his/her parents, to explore the rest of the church, or to escape from a loud or overstimulating class.
  • Be careful not to reward elopement. I know that sounds a little odd; I mean, why would you want to reward that? But consider this: one of our kids who elopes tends to run away, giggling and looking back with a huge grin. If it weren't so unsafe, it would be cute. (Okay, okay, it's a little cute either way!) It takes a lot of self-control not to giggle with him, but every time he sees a helper laugh at that behavior, it reinforces it. Don't reinforce a behavior that you don't want to continue. Don't act like it's a game; treat it as a serious safety matter, because it is one.
  • Plan transition times well. During our first two services, most kids go to the playground, and in our third service, children age four and up have small group time in their classes and then large group time in a bigger room. During the transitions from one place to another, I aim to position myself so that I can avoid a running situation with either of our kids who elopes. 
  • Make it more difficult to elope. In the past, we've used chimes on doors, baby gates in classes that usually wouldn't have them, and closed doors in classes that would usually have the door open. Also, we have arranged class environments so that no one in the class is by the door at any time other than pick up and drop off. Speaking of that...
  • Have a plan for pick-up and drop-off times. Classes tend to be a little more chaotic at those times, as do church hallways. Exercise extra caution and prevention in those instances, and plan activities that keep the person who elopes away from the door. 
  • Ensure that you have enough volunteers. We know the parable of the 99 sheep that Jesus told, in which the man leaves his 99 sheep in search of the one that is missing. That is a wonderful parable and a good reminder of why we want to welcome these families, because otherwise we're sending that one sheep away from a church. However, it's not good or safe ministry practice to emulate it by leaving the rest of the class unattended while you go in search of the person who wandered off. Make sure the rest of the class will be fine with other volunteers while one pursues the wanderer (two if the individual might be in a more remote area, because it's never wise or safe practice to create a situation in which the volunteer will be alone with the child).
  • Make sure other key staff and volunteers are aware of the best ways to respond when they see someone eloping. This might not be any different from what you would do if any other child ran off. Or it might involve specific tips for the child or adult in question; for example, if a child is fearful of strangers, it might be best for an unknown stranger to follow the child until a known helper arrives.
 And, to highlight why this is important, consider these points copied from the research report I linked to above (which involved surveys of more than 800 parents):
  • More than one third of children who elope are never or rarely able to communicate their name, address, or phone number verbally or by writing/typing
  • Two in three parents report their missing children had a "close call" with a traffic injury
  • Wandering was ranked among the most stressful ASD [autism spectrum disorder] behaviors by 58% of parents of elopers
  • 62% of families with children who elope were prevented from attending/enjoying activities outside the home due to fear of wandering
  • 40% of parents had suffered sleep disruption due to fear of elopement
  • Children with ASD are eight times more likely to elope between the ages of seven and 10 than their typically-developing siblings
Please don't miss in these stats that parents of children who elope are often stressed out - not sleeping, not participating in typical activities. Find ways to show them love and, if possible, give them a break. Sunday morning can be that break, as can respite care (which I'll post more about next week).
    For resources related to elopement, go here. Also, the National Autism Association, in collaboration with the American Legion Child Welfare Foundation, is offering a box of resources and information for parents, including door alarms and shoe ID tags. You can direct caregivers to this link to fill out a form to apply for a free safety box.

    Which of the tips above do you think is most useful? Are there other tips you would add?

    Tuesday, April 19, 2011

    what stood out at our last special needs ministry training

     After a recent leadership training, I got an email from one of our volunteers who serves as a one-on-one buddy with a child with special needs each Sunday. She also works in the field of special education. (And she's wonderful. Just saying.)

    At our training, we focused on confidentiality and a new sub system and strategies for working with individuals with limited verbal communication skills. What part did she thank me specifically for? None of those things.

    Loved the verses you gave us as to why we serve these precious children.  Helps me in my job as well!

    Whenever I talk about special needs ministry, I always begin with prayer and a passage of Scripture. It's not just for the benefit of those I'm speaking to - it's for me. I'm a task-driven person who can easily dive into the doing without grounding myself in the reason. The Reason. God.

    If you're involved with special needs ministry, if you're invested in a different ministry area, if you're a parent to a child with special needs, if you have some sort of disability yourself, if you work in special education...simply if you're a believer, then I urge you to do the same. Start with prayer and the Word of God; anything else is secondary.

    Furthermore, this is a big week of activity for many ministries and churches and families, but all the activity is worthless if we overlook Christ in the busy-ness. Don't just focus on what you need to do each week; focus on why you're doing it.

    The eye cannot say to the hand, "I have no need of you," nor again the head to the feet, "I have no need of you." On the contrary, the parts of the body that seem to be weaker are indispensable, and on those parts of the body that we think less honorable we bestow the greater honor, and our unpresentable parts are treated with greater modesty, which our more presentable parts do not require. But God has so composed the body, giving greater honor to the part that lacked it, that there may be no division in the body, but that the members may have the same care for one another. If one member suffers, all suffer together; if one member is honored, all rejoice together.
    {1 Corinthians 12:21-26}

    ~+~
    Also, here are a couple articles online you might want to check out:

    Sunday, April 17, 2011

    what parents are saying about the church on the web

    I'm surprised to be saying this, as a Twitter newbie, but I love Twitter. I've found so many great resources through Twitter, and I'm always looking for more. (And, on that note, please point me toward any resources you've found valuable, particularly any statistics and research you've found - numbers not just anecdotes - about special needs ministry and/or people with disabilities and faith/religion/church!)

    These are a few women who I've found via Twitter, moms who can help us all understand why special needs ministry matters.

    First up, Sarah who blogs here but guest-posted here about the church & autism:

    I would also suggest to parents that they do everything they can to integrate their child into “normal” youth activities as much as possible.  Obviously, sometimes that just won’t work, depending on the child’s needs.  But when it will — go for it.  Allowing typical children to interact with a person of special needs is an experience that will stick with them far longer than childhood.  And you may be surprised at the benefits to your own child.  Again, ask for help.  Seek the input of other parents and see what can be done to provide a mutually beneficial experience for all the children of the church. {To read the rest of the post, click here.}

    Next, Amanda who blogs here but guest-posted here at my one of my favorite autism blogs, The Thinking Person's Guide to Autism (and who will be guest-posting on this blog in the near future - and can I just say how excited I am about that?!?)

    There was a time when I took going to church for granted. I grew up in church with a tight-knit group of friends who went on trips together, put on plays, occasionally behaved badly and yet, were ultimately baptized into a family that was more than the sum of its parts. Church was fun -- and yes, uplifting and spiritually rewarding -- but when you're a kid, the fun is what gets you there. I always wanted my children to have the same opportunity. {To read the rest of "Church with the Special Needs Child," click here!}

    And, finally, at 5MinutesforSpecialNeeds, this week Heather wrote about the public humiliation she's experienced at church:

    Why can’t we take our child to church? My mother is convinced of my eternal damnation because we don’t take the children to church. I keep asking her if she can find me a church that will “allow” Jack to sit there and be loud. Sure, they’ll “allow” it, but no one will speak to us, and eventually, after enough death stares, we’ll quit going again. {Read more here.}

    Please pray for your church and other churches, that we wouldn't miss the opportunity to show love to all people, including those with disabilities. And pray for Heather's family to find a welcoming church, because they are still searching for one.

    Friday, April 15, 2011

    If it's about Jesus, why are some of the best resources outside of the church?

    Yesterday I replied to an email from a new friend at The International Baptist Church in Santo Domingo, Dominican Republic, He is interested in disability ministry, and he wanted some suggestions about where to start exploring this ministry area. My first piece of advice might surprise you.

    Yes, as I wrote yesterday, this ministry - any ministry - is about Jesus.

    But, in many cases, the church has failed to love people with disabilities as we should. And those outside of the church have done a far better job.

    Therefore, my first suggestion to him was this:

    My first recommendation would be to research what non-religious groups are doing to help people with disabilities in Santo Domingo and the rest of the Dominican Republic. Unfortunately, the church hasn't typically done a good job caring about people with disabilities, so this is an area in which we can learn a lot from what public schools and other groups are doing well.

    I pray that a day might come when my advice can be different. I pray that the ministry at our church and in your church and in other Gospel-centered churches will so clearly demonstrate our love for others and our desire to serve rather than exclude that those outside the church will say, "You want to learn about working with people with disabilities? Then you need to check out what these Christians are doing. We may not believe what they believe, but what they're doing and the way they're doing it is excellent. We can learn from them."

    This isn't a ridiculous hope, because it's not our excellence that they would be seeing. It's His.

    Which, once again, is why it's crucial to not only talk about the practicalities of special needs ministry, but also the reasons, the Reason. Him. The Gospel.

    If we seek our own best, we'll fail. We'll continue to be in a place in which non-Christian resources for serving individuals with special needs are the first place we recommend because the Christian resources are limited (and, in some cases, simply not excellent).

    If we seek His best and do it for His glory, though, our ministry can reflect an excellence that can only comes from God. Isn't that what we ultimately want?


    (Quick disclaimer: Please, please, please do not misinterpret my words to mean that I think that every resources related to special needs ministry is terrible or lacking in excellence. If you've read any other posts here, you know that isn't true. However, if you examine almost any other ministry area, you'll find more resources than what's out there right now for special needs ministry. There is good stuff, just not as much as there should be; there are churches doing special needs ministry well, just not as many as there should be.)

    Thursday, April 14, 2011

    What's it all about?

    Special needs ministry isn't primarily about civil rights or political correctness or pity or awareness or education.

    It's about Jesus.

    For example, it's Autism Awareness Month. Given that the current estimate is that 1 in 110 children have an autism spectrum disorder (source: CDC, among others) - and about 1 in 70 boys - we all need to be aware of what autism is, what it means for families, and ways that we can minister to and with people with autism. There are fantastic posts on ministry- and disability-related sites about those things this month. And there are some coming here in the near future as well.

    However, if every church leader learns about autism and if every person in the pew (or, at my current church, chairs) learns about autism, that wouldn't be sufficient. We can become like Bart Ehrman, religious studies professor who teaches New Testament at my alma mater, who knows lots of facts about the Bible and church history but rejects it all as false and identifies himself as an agnostic. 

    Simply learning about disabilities and special needs isn't enough. Knowledge doesn't change us. Loving people, as Jesus did and does, changes us and others. 

    And if I have prophetic powers, and understand all mysteries and all knowledge, and if I have all faith, so as to remove mountains, but have not love, I am nothing. {1 Corinthians 13:2, ESV}

    If I can convince leaders in my church to remove every mountain that serves as a barrier to ministry to and with people with special needs, that won't be enough. Changes could be made out of duty or obligation or even just a desire to get me to stop bugging them.

    A new commandment I give to you, that you love one another: just as I have loved you, you also are to love one another. By this all people will know that you are my disciples, if you have love for one another. {John 13:34-35}

    The new commandment Christ gives isn't "create programs." It isn't "remove barriers." It's not even "include one another."

    Love one another.

    And while effective special needs ministry does bring awareness and education, that's not the hallmark of what we do or the end goal. It's about the gospel. It's about love.

    It's about Jesus.

    Tuesday, April 12, 2011

    on showing grace to others
    (and a confession of a time when I didn't)

    While I'm writing this post with a special needs ministry slant, it's a much broader issue of Christian community that isn't rooted in any one ministry area. It's about love and compassion and sincerity. It's about knowing who we are and whose we are and acting on that knowledge.

    So what is it?

    Showing grace to one another, including ourselves.

    Here's an example from a special needs ministry conference I attended: In one session, a woman was sitting in front of me who seemed jovial enough as we started. Then, throughout the session, she made seemingly incessant comments to the presenter.

    Now, please understand that my church in South Texas was of the old school, Southern Baptist variety in which a hearty "amen!" was not inappropriate to call out from time to time. (Granted, as a gal with backgrounds in Moravian, Lutheran, and Episcopalian churches, I never called out, but I was not uncomfortable with those who did!) Therefore, the first few affirming comments from the woman didn't bother me, but as the session progressed, I found myself getting more and more annoyed.

    It wasn't until the presenter glanced my way as I was fully rolling my eyes that I realized the absurdity of it: here I was, as a special needs ministry coordinator, at a special needs ministry conference, with my panties in a bunch because someone else dared to act in a different way from me.

    Could the woman have had a disability, something like ADHD or Asperger's? Possibly. Or maybe not. Maybe she was just tired and found it easier to stay engaged if she did so verbally. Maybe she thought she was encouraging the speaker. (And she might have been, because the presenter never seemed annoyed like I was.) Or maybe she was just incredibly friendly.

    And me? I was a jerk.

    Sure, I was tired. But I was also selfish and hypocritical and arrogant and condescending.

    Instead of treating her behavior with grace and appreciating her input, I became irritated. And I wasn't even concerned about my rotten attitude until I thought that the presenter caught me rolling my eyes.

    Thankfully, the woman in front of me didn't realize I was ever annoyed. But I'm glad God showed me how ugly my attitude was, because it did two things for me:

    First, it helped me understand why some folks in the church can be resistant to special needs ministry. Worship (or simply learning) alongside someone who is different from us forces us to adapt. And sometimes it's easier to be selfish and hypocritical than compassionate and grace-filled

    And, second, it allowed me the opportunity to show grace to myself. I can humbly acknowledge sinful attitudes in my life, confess them to God in repentance, and move on to the next thing He has in store without camping out in the land of shame.

    And I can learn from it (and hopefully you can too!) so that next time I can be the one who is thankful for those who aren't like me, instead of irritated by them and their rightful inclusion in the body of Christ.

    Monday, April 11, 2011

    Five ways to make your church more inclusive

    I have found Amy Fenton Lee's blog to be incredibly helpful for special needs ministry know-how, and obviously the folks at specialchildren.about.com agreed, because they interviewed her. Several of you have shared with me that you want to start a special needs ministry or get more buy-in for an existing one, and this article that includes that interview - titled Five Ways to Make Your Church More Inclusive - is a fantastic resource for doing just that.

    You'll need to follow the link to get the full content, but - in brief - Amy recommends:
    1. Sharing statistics. I did this to invest our leaders, and I'll be posting later this week about some useful statistics as well as some flawed one that are used, abused, and oft repeated even though they aren't accurate.
    2. Providing role models. It definitely helps to be able to share what other churches are doing.
    3. Help church leaders network. The concept of segregated church buildings and denominations that exist in isolation from one another isn't found anywhere in the Bible. Our church hosted Joy Prom, a massive event for adults with special needs, for several years before we began sharing the event with other churches. Now we hold it one year, and then a different church hosts it the next year. I love being involved with it, so a part of me is sad that Joy Prom isn't at our church this year. But I'm so excited for our friends down the road, that their church gets to experience it too and that we can sharpen, refine, and support one another in our efforts!
    4. Narrow your focus. This one is the hardest for me, but it is so very true. I want to do everything at once. But I can't. Feel free to keep a parking lot of ideas where you park those longer-term vision and action steps, but decide what one or two things you're doing now. 
    5. Suggest helpful resources. This is a big step too, because I've found that some folks are scared to do special needs ministry because they simply don't know what to do or how to do it and they don't want to fail. (And this ties back to number three, because other church leaders are key resources for you!)
    For those of you who are just starting out, which step is the hardest for you?

    And, whether you're new to special needs ministry or not, what's your narrowed focus right now? In other words, what's - to use Amy's words - the "one change that would make the biggest impact on families with special needs" at your church? (I'll be sharing the answer to that for our church later this week!)

    Sunday, April 10, 2011

    Confidentiality: Why it matters

    We all live in a fallen world. As such, it isn't pessimistic to state that everyone has challenges and unexpected circumstances. But I wouldn't want to wear my challenges as a placard around my neck, presenting them as if they define me.

    How about you? What were your challenges this week? How would you feel about wearing them around your neck for all to see at church next Sunday?

    Yeah, I didn't think you would. But that's exactly what we do when we present a disability as the defining aspect of a person.

    You'll never see the real name of anyone with special needs on this blog nor any easily identifiable characteristics. The only pictures you'll see are ones that I have permission to post, and I don't add names to those either.

    I could use names, because some of our parents would be comfortable with that. I don't, though, because I don't want someone to meet one of these individuals and know his label before his personality. If it were my child, I would want you to know my son or daughter as a kid first and foremost.

    For that reason, all of our volunteers sign a confidentiality form. It's nothing fancy, just a statement like this:

    I, __________________, serve Christ as a volunteer in special needs ministry at [insert church name]. In that role, I understand that I will learn about the special needs of the individual(s) with whom I serve. Out of respect and love, I will not disclose that information to anyone outside of this ministry.

    Some people with disabilities don't mind everyone in the church knowing about their special needs. (And for those with physically apparent conditions, they might not have a choice about it.) However, it's not up to us to decide when, how or with whom the information ought to be shared.

    It's not our story to share or not share; it's theirs.

    Saturday, April 9, 2011

    "But what if we don't want to add another program to our church?"

    It's easy nowadays for churches to become all about programs. In the words of Jason Stellman in Dual Citizens: Worship and Life between the Already and the Not Yet,
    The first questions pastors often hear from visitors to their churches concern programs: “Do you have a young married couples ministry? How about an alcoholics’ recovery program? What activities does your youth ministry offer? And do you have anything for my green-eyed, left-handed pre-teen daughter who loves ferrets and plays the oboe?” The assumption seems to be that since the church is primarily a means for social interaction, it should provide “Christian” versions of whatever club or subculture we feel drawn to, no matter how narrow or age-specific.
    Often churches are hesitant to cater to every sub-group in their congregation, lest the parts of the body of Christ be segregated and the Gospel get buried under all the programs. And while this is certainly a valid concern, special needs ministry simply can't be likened to a program for green-eyed, left-handed pre-teen girls who love ferrets and play the oboe.

    Why not? Well, for one, those green-eyed, left-handed pre-teen girls can
    • participate in other programs, 
    • worship with others (you know, the right handers with brown and blue eyes),
    • understand the Gospel as it is shared to anyone else and share it with others, and
    • serve within the church.
    Can individuals with special needs do those things at your church? Some can, depending on the extent to which their disabilities affect them, but many cannot at most churches.

    My role as special needs ministry coordinator at our church isn't to create new programs. It's to identify barriers to ministry for these families and to remove those obstacles.

    Special needs ministry isn't a new silo of ministry in your church. It's about making sure that every part of your church is accessible and welcoming.

    Friday, April 8, 2011

    What disability ministry is
    (insights from the Accessibility Summit)

    One of the workshops I attended at the Accessibility Summit last week was titled Built to Last – Sustaining a Disability Ministry. It was a panel discussion featuring four directors for special needs ministry at different churches. While I gained several great takeaways from it, these points from Connie Hutchinson from First Evangelical Free Church of Fullerton, CA must be shared. (The points, bolded and italicized, are hers; the commentary on each comes from me.)

    Disability ministry is...
    1. ...not a numbers-driven ministry. She pointed out that it's not about how many families with special needs come to your church. It's about being a welcoming place, reaching out to your community, and serving those who come. Another way of wording this is found in my church's core beliefs, the emphasis on faithfulness over fruitfulness. We're called to be faithful; God is the one who brings forth the fruit.
    2. ...not cost-effective. We're not just talking about money here. The human cost in terms of volunteers needed is higher in special needs ministry than in other ministries.
    3. ...long-lasting. It's a lifetime commitment. A lot of churches only have special needs ministry programs for children, maybe even youth. But you know what? Those children and youth grow up. The adult special needs ministry at our church began at the result of one of our kids growing up and her family stepping forward to create a meaningful and welcoming place in our church for her and others. (And you don't need to wait until the children with special needs at your church grow up; there are adults with disabilities in your community already!)
    4. ...a mission field. I've seen estimates that as many as 90% of people with disabilities are unchurched. I've never been able to find good sources for these numbers, so I'm not sure if that figure is fully accurate, but it is well-documented that church involvement of individuals with special needs is not high. If you want to share the good news of Christ with all people, then this is a good place to start!
    5. ...relationship-driven rather than program-driven. This is true of any ministry. However, special needs ministry requires it more so than others, at least in my experience. When I was a youth ministry leader, it was possible to run all our weekly programming without getting to know students well. That wouldn't be effective ministry, but I've seen it happen before. In special needs ministry, though, it's about the individual not the disability or the program.
     And, finally, I would add one more: It's worth it.

    Thursday, April 7, 2011

    Notes from the Children Desiring God autism workshop
    (one more fantastic link!)

    I love it when friends share special needs ministry articles with me! (Thanks, Kim!)

    Here's one that I didn't catch before my post yesterday, but it's another must-read related to autism and special needs ministry. Sojourn Kids has graciously posted the notes from the Children Desiring God conference's breakout session titled "Disability, Autism, and the Tender Mercy of God," led by Brenda Fischer, the Disability Ministry Director for Bethlehem Baptist Church in Minneapolis, MN. Go HERE to read them!

    Wednesday, April 6, 2011

    great reads on the web - april 6, 2011

    While I have a list of 15-20 blog posts that I'm excited to be writing in the near future, I first want to pause to point out some phenomenal ones written by some incredibly talented people. Many of them are related to autism because this is Autism Awareness Month, and I think each one is 100% worth reading. (That's why I changed my usual title for this sort of post from "good reads" to "great reads." Because these are fantastic posts by some folks I truly respect.)

    First, Amy Fenton Lee at The Inclusive Church has written an insightful series titled "5 Things to Know about the Mother of a Child with Autism." I am sometimes hesitant about recommending a resource about parents of children with a disability that isn't written by a parent of a child with a disability, but Amy has spent countless hours interviewing mothers, and the response to this series has been outstanding (deservedly so!). Of course, every mother - just like every child - is different, so these might not apply universally, so please pay attention to Amy's note about that on the first post in the series. Without further ado,
    Katie Wetherbee has written two great posts this week about welcoming families with a child with an autism spectrum disorder. This one today describes some ways that the Philadelphia International Airport is proactively accommodating families affected by autism and what we, as the church, can learn from it. Recently at our church we did a Saturday walk-through of our first-grade Bible day rally (which was held the following day) with a child with Down syndrome, similar to what Katie suggests here, so please keep in mind that this sort of previewing of church activities can be helpful for kids with other special needs as well!

    And this post from Katie provides great pointers for preparing your church to be a welcoming place for children with autism. (And might I add that Katie is one of the kindest online friends I've met? 'Cause she is.)

    And this post from John Knight isn't autism-specific but it is a good reminder that God equips those He calls to special needs ministry rather than simply calling those who are already equipped. (And while I am incredibly humbled that he shared some writing from this blog there, that's not why I'm recommending it!)

    So click through and read these great posts! You won't be disappointed. And, assuming the pesky head cold I've been fighting calms down by tomorrow, you can be expecting daily posts here for the next couple of weeks.

    Monday, April 4, 2011

    Teaching lessons for all learners

    When I was teaching special education, the most useful professional development session I went to was one that brought together Understanding By Design principles with Differentiated Instruction. You don't have to know anything about those to read on; I just want to be clear that the basic concept here is not my own but rather drawn from educational literature.

    (That said, I've never seen it applied to ministry settings, so while the basic content isn't unique, the application of it may be.)

    As you plan each lesson/unit/year, you can group content into these categories:
    1. The most important thing: In other words, if the kids in your ministry left this Sunday morning having learned only one thing, what would you want it to be? What would be the perfect answer you'd like for kids to be able to give when mom or dad asks, "What did you learn in class today?" (That's a micro application, but you can also think about from a macro - big picture - level too, asking yourself what one thing you want kids to know at the end of the year or once they leave your ministry, such as transitioning from children's to middle school ministry.) You could consider this to be the "must learn" point in your teaching.
    2. Other important stuff: This is the second tier. If your kids (or adults!) have grasped the most important thing, what else would you like them to know and understand and apply in their lives beyond that?  You could consider this stuff to be the "should learn" points in your teaching.
    3. Helpful stuff: This is the third tier. If the most important thing and the other important stuff are understood, then what else is in the lesson that or story that could be helpful? You could consider this stuff to be the "nice to learn" points in your teaching.
    4. Non-essentials: I didn't include this in my image, but it would be in the white space outside of the ovals. It's good to be mindful that there could be things in your lesson that just don't matter. If, for example, you use a Veggie Tales clip, does it matter if your kids can tell you whether or not Junior Asparagus made an appearance? (Not really.)
    In other words, if you only teach one thing on Sunday, you'll want it to be the green stuff from the picture above. Then next priority would be the yellow stuff. Then, after that, you can be concerned with the orange items. If you run out of time or if you have fewer teachers than planned, you can prioritize the green thing and even scrap the orange stuff and maybe even the yellow (especially because a point that is merely helpful in one lesson could be a more important point in a future lesson).

    Another way to think about this is that each week you'll have some kids who understand the green and the yellow and the orange, some who just understand the green and the yellow, and some who only grasp the green. (And, let's be honest, some weeks there are kids who don't get any of that and just have a good time - or even a not-so-good time.) If you know which point is your most important thing, though, you've clarified your purpose and prioritized the content you'll be teaching that day.

     By now, you may be wondering, but how does this apply to special needs ministry?

    If an individual with special needs has intellectual limitations or behaviors that make it challenging to remain focused for the entire lesson, it's good to be able to prioritize your instruction. If only one thing gets taught this week, do you want it to be one of the points from the helpful stuff? No! You want to aim for the meaty green stuff in the image above, the most important thing.

    But what if the child's disability makes it difficult for him/her to grasp the most important thing each Sunday? That's where the macro-view I mentioned earlier comes in: if you know what the most important thing for the year is or what the most important thing for your ministry as a whole is, then that is what you want to stress, week after week, even if each Sunday's most important thing isn't always understood.

    what does that look like?

    As I've shared before, we don't have a self-contained class for children or students with special needs at our church. We're not absolutely opposed to that, but right now it's working well to include our kids with special needs in existing classes, often with a one-on-one buddy for support. (We do, however, have a class of about 15-20 adults with disabilities that is separate from our other adult classes, because they wanted and needed a class of their own in which the Gospel could be shared and discipleship could happen in a meaningful way for each individual.)

    In one of our classes, we have a boy with Down syndrome who has a very short attention span; let's call him Luke for the sake of this example. His one-on-one buddy - we'll call her Jessica - has a copy of the curriculum (which, by the way, is hugely important - even if buddies aren't teaching the lessons, they need to know what will be taught). Because Jessica knows what is being taught each week, she can reinforce it and, if Luke isn't engaged with the rest of the class, she can work on driving home that one most important thing while they are in another part of the classroom.

    It does happen from time to time that the lesson changes or that Jessica or other buddies don't get a chance to see the lesson before Sunday. In that case, Jessica can ask the volunteer teaching the lesson: What's the most important takeaway from today's story for our students? Even teachers who don't think about their lessons in the framework of the image above can answer that kind of direct question, and then Jessica knows what she'll focus on if she and Luke aren't actively involved in the teaching portion of class.

    ~+~
    Because this works for us, we don't use a curriculum designed for children or students with special needs. I will post a list of curricula I've seen around, but I can't really recommend any, for the sole reasons that I don't recommend resources I haven't used. For our adult class, we use Access from Lifeway; you can find a sneak peek of it here as well as the glance at Special Buddies, their children's curriculum for kids with special needs (the Access sample is at the bottom of the list titled "Bible Studies for Life" and Special Buddies at the bottom of "Bible Teaching for Kids"). They also have great downloads here.

    And while this post doesn't relate to it, I had a fantastic time and gained valuable resources at the Accessibility Summit conference this weekend. I'll have several upcoming posts highlighting content or resources from that sweet time in DC.